My 10 year old has CRPS in her ankle. Are there many children in New Zealand RSD/CRPS? - crps more condition_treatment
My dear girl (10) has RSD / CRPS in ankle. We are fortunate to have a diagnosis, but do not get to see a pediatric neurologist for a further 3 weeks. We are about to swim from time to time, desensitization, and is now Amitriptyline 10mg twice daily. The pain makes you unhappy (including me). From what I've read everything everyone seems to react differently. A practitioner is reluctant to use TENS.But if we had no success to overcome this condition, we would like to know. We live in the vicinity of Christchurch, New Zealand.
Wednesday, January 27, 2010
Crps More Condition_treatment My 10 Year Old Has CRPS In Her Ankle. Are There Many Children In New Zealand RSD/CRPS?
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4 comments:
Rusyl Hello,
Thank you sorry for your daughter. I am 22 and have since I CRPS was 14 - my right leg is to participate at the hip to the toes and is the worst case, my neurologist has seen in 15 years.
Swimming and desensitization is a good start and to maintain the movement and muscles of the ankle and leg. I assume that the neurologist, which will be mentioned by the treatment of lumbar sympathetic block, otherwise see, be sure to discuss them because they are effective when in relatively good since the beginning and what we mean, there used a high success rate higher in children than in adults. Has the neurologist knows, she comes to him / her because of the CRPS? If not, make sure that he / she does not because her daughter to see. When amitriptyline is not alone in their pain management is that it could consider other treatment options the doctor, are used for example, certain anticonvulsants and opioids in the treatment of CRP.
I take 200-300 mg of tramadol, amitriptyline, 20 to 30 mg and 60 mg of baclofen(Muscle relaxant) per day. I also have a pacemaker, spinal cord, I'm doing my Botox for muscle contraction, and I'm using to test a drug pump cable. (Be advised this is not uncertain, it is not too often in this grave, and only 10 and I think it is easy to diagnose your daughter has a very good prognosis.)
I can not really understand the reluctance to use the TEN physiotherapists. It is not invasive and can provide some relief from their pain. The only problem I saw with him that (allodynia pain caused by painful stimuli, like touch can make normal) very, very difficult to effectively use it. Another possibility for him if you find a therapist that you do not, they classified the images of the engine or therapeutic levels (a search on Google for certain groups of physiotherapists) ... can be very effective in reducing pain in the early stages, and I know some people who were completely cured with this technique.
Please do not hesitate to email me, if I can somehow can help. In addition, I propose that THat to look www.ozrsd.org / forum, even if a page called "Australian", we have a handful of members in New Zealand may be able to give specific advice in New Zealand, and there are several members (ie the ability to care of children with CRPS).
Good luck to you and him. It is a terrible disease, but their chances for a good result is very good:)
I'm sorry to hear about your daughter RSD / CRPS to. This is certainly not a pleasant thing to handle. He was 12 when I received my first injury, which caused my RSDS, I understand the frustration of his daughter.
I once had a girl in New Zealand support group that some of the young people performing in DSR. I'm pretty sure it's not the whole group, so I guess I can not help this aspect of your question. I asked some of my contacts if they know of another child with RSD in your area in the world, if you wish.
With regard to the treatment, you are right: the reactions are from patient to patient. One thing I can say that children usually respond better to treatment in general (as opposed to adults, opposite). Comparatively, children do not respond better to treatment than adult-) invasive (physical therapy and medication, and usually better to more invasive treatments such as blockages.
TEN daughter could do therapists are reluctant to be worth a try. It can really9, not bad, and if it helps your pain can be a good thing. I have a for a while, when I was younger, and found that a little help.
I'll tell you about my success, "beat" the DSR. In my case, I answered better if I had the combination therapy, while blockages, medication and therapy. After many blocks and continuous intensive care (more than four hours per day), I slowly improved. Finally, I had little or no pain and I could walk again. Today I have a little pain again, which I find annoying, but at a level that can be treated and continue to live normally.
I hope that your child can be successful in overcoming the disease and return to a normal 10 years, very soon!
Got it. You know, there is no cure. With early diagnosis (usually before 3 months), there is a possibility they can do something, that's what they told me. I'm not even sure who he was, and his 8 years. I am in pain, but I'm an adult. His poor daughter, I feel so bad for them. What is the diagnosis? It was curious to know what your test screening? You can write to me. I have done much research on this disease.
I have CRPS / RSD in her right leg from the knee to my feet. I am 14 and have been a little over a year and a half. I have been on many medications for nerve pain, and many different medications, none of them have helped them more. I had a pacemaker in the spinal cord (SCS) implanted by 70% to 80% of my pain relieve. I have not been able to use a TENS unit with my pain, but some people take advantage and get relief. You can try TENS therapy and see if it works and if the pain worse if I no longer use, but if it helps me to know what it is. I live in America, so I can not help with someone who lives in New Zealand. There are some groups you can join Yahoo and others can in New Zealand and / or other support to be found, have helped me to overcome some of my pain and other problems in the treatment of pain. I propose that the preservation of lumbar sympathetic block, then from there. For more information on the spinal cord in Stimluators www.ans-Luc medical.com Goodk!
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